Applied Nursing Research
Volume 21, Issue 2 , Pages 90-97 , May 2008

Barriers to recruiting urban African American women into research studies in community settings

  • Kathleen M. Russell, DNS, RN

      Affiliations

    • School of Nursing, Indiana University, Indianapolis, IN 46202, USA
    • Corresponding Author InformationCorresponding author. Tel.: +1 317 274 4079; fax: +1 317 278 1378.
    • ,
  • Maltie S. Maraj, JD

      Affiliations

    • Sponsored Research Services, Indianapolis, IN 46202, USA
    • Tel.: +1 317 274 2123.
    • ,
  • Lisa R. Wilson, BA

      Affiliations

    • School of Nursing, Indiana University, Indianapolis, IN 46202, USA
    • Tel.: +1 317 274 2374.
    • ,
  • Rivienne Shedd-Steele, BA

      Affiliations

    • Cancer Information Service, Midwest Region, National Cancer Institute, Indiana University Cancer Center, Indianapolis, IN 46202, USA
    • Tel.: +1 317 278 0073.
    • ,
  • Victoria L. Champion, DNS, RN, FAAN

      Affiliations

    • School of Nursing, Indiana University, Indianapolis, IN 46202, USA
    • Tel.: +1 317 278 2036.

Received 6 January 2006 ,Revised 16 May 2006 ,Accepted 18 May 2006.

References 

  1. Basch CE. Focus group interview: An underutilized research technique for improving theory and practice in health education. Health Education Quarterly. 1987;14:411–448
  2. Bonner GJ, Miles TP. Participation of African Americans in clinical research. Neuroepidemiology. 1997;16:281–284
  3. Brawley OW, Tejeda H. Minority inclusion in clinical trials: Issues and potential strategies. Journal of the National Cancer Institute Monographs. 1995;(17):55–57
  4. Brown DR, Fouad MN, Basen-Engquist K, Tortolero-Luna G. Recruitment and retention of minority women in cancer screening, prevention, and treatment trials. Annals of Epidemiology. 2000;10(8 Suppl):S13–S21
  5. Champion, V. L., Springston, J., Zollinger, T. W., Saywell, R. M., Monahan, P. O., Zhao, Q. et al. (under review). Comparison of three interventions to increase mammography screening in low income African American women.
  6. Clegg LX, Li FP, Hankey BF, Chu K, Edwards BK. Cancer survival among US Whites and minorities: A SEER (Surveillance, Epidemiology, and End Results) Program population-based study. [see comment] Archives of Internal Medicine. 2002;162:1985–1993
  7. Coleman EA, Tyll L, LaCroix AZ, Allen C, Leveille SG, Wallace JI, et al. Recruiting African-American older adults for a community-based health promotion intervention: Which strategies are effective?. American Journal of Preventive Medicine. 1997;13(6):51–56
  8. Corbie-Smith G, Thomas SB, St. George DM. Distrust, race, and research. Archives of Internal Medicine. 2002;162:2458–2463
  9. Corbie-Smith G, Thomas SB, Williams MV, Moody-Ayers S. Attitudes and beliefs of African Americans toward participation in medical research. Journal of General Internal Medicine. 1999;14(9):537–546
  10. Derose KP, Hawes-Dawson J, Fox SA, Maldonado N, Tatum A, Kington R. Dealing with diversity: Recruiting churches and women for a randomized trial of mammography promotion. Health Education & Behavior. 2000;27(5):632–648
  11. Escobar-Chaves SL, Tortolero SR, Masse LC, Watson KB, Fulton JE. Recruiting and retaining minority women: Findings from the Women on the Move study. Ethnicity & Disease. 2002;12(2):242–251
  12. Fitzgibbon ML, Prewitt TE, Blackman LR, Simon P, Luke A, Keys LC, et al. Quantitative assessment of recruitment efforts for prevention trials in two diverse Black populations. Preventive Medicine. 1998;27(6):838–845
  13. Flores ET, Castro FG, Fernandez-Esquer ME. Social theory, social action, and intervention research: Implications for cancer prevention among Latinos. Journal of the National Cancer Institute Monographs. 1995;(18):101–108
  14. Freedman TG. “Why don't they come to Pike Street and ask us?” Black American women's health concerns. Social Science & Medicine. 1998;47:941–947
  15. Gamble VN. A legacy of distrust: African Americans and medical research. American Journal of Preventive Medicine. 1993;9:35–38
  16. Giuliano AR, Mokuau N, Hughes C, Tortolero-Luna G, Risendal B, Ho RCS, et al. Participation of minorities in cancer research: The influence of structural, cultural, and linguistic factors. Annals of Epidemiology. 2000;10(8 Suppl):S22–S34
  17. Heitman E, Wells AL. Ethical issues and unethical conduct: Race, racism, and the abuse of human subjects in research. In:  Beech BM,  Goodman M editor. Race and research: Perspectives on minority participation in health studies. Washington, DC: American Public Health Association; 2004;p. 35–59
  18. Jemal A, Clegg LX, Ward E, Ries LA, Wu X, Jamison PM, et al. Annual report to the nation on the status of cancer, 1975–2001, with a special feature regarding survival. Cancer. 2004;101:3–27
  19. Jones JH. Bad blood: The Tuskegee syphilis experiment. New York: The Free Press; 1993;
  20. Julion W, Gross D, Barclay-McLaughlin G. Recruiting families of color from the inner city: Insights from the recruiters. Nursing Outlook. 2000;48:230–237
  21. Krueger RA. Analyzing and reporting focus group results. Thousand Oaks: Sage Publications; 1998;
  22. Krueger RA, Casey MA. Focus groups: A practical guide for applied research. 3rd ed.. Thousands Oaks: Sage Publiations; 2000;
  23. McCaskill-Stevens W, Pinto H, Marcus AC, Comis R, Morgan R, Plomer K, et al. Recruiting minority cancer patients into cancer clinical trials: A pilot project involving the Eastern Cooperative Oncology Group and the National Medical Association. Journal of Clinical Oncology. 1999;17:1029–1039
  24. McDaniel RW, Bach CA. Focus groups: A data-gathering strategy for nursing research. Nursing Science Quarterly. 1994;7:4–5
  25. In:  McNeilly M,  Musick M,  Efland JR,  Baughman JT,  Toth PS,  Saulter TD, et al. editor. Minority populations and psychophysiologic research: Challenges in trust building and recruitment. New York: Springer Publisher; 2000;
  26. Millon-Underwood S, Sanders E, Davis M. Determinants of participation in state-of-the-art cancer prevention, early detection/screening, and treatment trials among African-Americans. Cancer Nursing. 1993;16:25–33
  27. Nyamathi A, Shuler P. Focus group interview: A research technique for informed nursing practice. Journal of Advanced Nursing. 1990;15:1281–1288
  28. Outlaw FH, Bourjolly JN, Barg FK. A study on recruitment of Black Americans into clinical trials through a cultural competence lens. Cancer Nursing. 2000;23:444–451
  29. Paskett ED, Cooper MR, Stark N, Ricketts TC, Tropman S, Hatzell T, et al. Clinical trial enrollment of rural patients with cancer. Cancer Practice. 2002;10:28–35
  30. Paskett ED, DeGraffinreid C, Tatum CM, Margitic SE. The recruitment of African-Americans to cancer prevention and control studies. Preventive Medicine. 1996;25:547–553
  31. Powe NR, Gary TL. Clinical trials. In:  Beech BM,  Goodman M editor. Race and research: Perspectives on minority participation in health studies. Washington, DC: American Public Health Association; 2004;p. 61–78
  32. Roberson NL. Clinical trial participation. Viewpoints from racial/ethnic groups. Cancer. 1994;74(9):2687–2691
  33. Shavers-Hornaday VL, Lynch CF, Burmeister LF, Torner JC. Why are African Americans under-represented in medical research studies? Impediments to participation. Ethnicity & Health. 1997;2(1–2):31–45
  34. Shavers VL, Lynch CF, Burmeister LF. Factors that influence African-Americans' willingness to participate in medical research studies. Cancer. 2001;91(1):233–236
  35. Sinclair S, Hayes-Reams P, Myers HF, Allen W, Hawes-Dawson J, Kingston R. Recruiting African Americans for health studies: Lessons from the Drew–RAND Center on Health and Aging. In:  Levkoff SE,  Prochaska GE,  Weitzman PF,  Ory MG editor. Recruitment and retention in minority populations: Lessons learned in conducting research on health promotion and minority aging. New York: Springer Publishing; 2000;p. 39–51
  36. In:  Wallace SA editors. Addressing health disparities through relational ethics: An approach to increasing African American participation in biomedical and health research. Thousand Oaks: Sage Publications; 2006;

PII: S0897-1897(06)00056-5

doi: 10.1016/j.apnr.2006.05.001

Applied Nursing Research
Volume 21, Issue 2 , Pages 90-97 , May 2008

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