Applied Nursing Research
Volume 23, Issue 2 , Pages 65-72 , May 2010

Effects of an intervention to improve communication about end-of-life care among African Americans with chronic kidney disease

  • Mi-Kyung Song, PhD, RN

      Affiliations

    • University of North Carolina at Chapel Hill School of Nursing, Chapel Hill, NC 27599, USA
    • University of Pittsburgh School of Nursing, Pittsburgh, PA 15261, USA
    • Corresponding Author InformationCorresponding author. Tel.: +1 919 843 9496; fax: +1 919 843 9900.
    • ,
  • Heidi S. Donovan, PhD, RN

      Affiliations

    • University of Pittsburgh School of Nursing, Pittsburgh, PA 15261, USA
    • ,
  • Beth M. Piraino, MD

      Affiliations

    • University of Pittsburgh School of Medicine, Pittsburgh, PA 15261, USA
    • ,
  • Jiyeon Choi, PhD, RN

      Affiliations

    • University of Pittsburgh School of Nursing, Pittsburgh, PA 15261, USA
    • ,
  • Judith Bernardini, BSN

      Affiliations

    • University of Pittsburgh School of Medicine, Pittsburgh, PA 15261, USA
    • ,
  • Denise Verosky, MSN

      Affiliations

    • Nursing Education and Research, University of Pittsburgh Medical Center, Pittsburgh, PA 15213, USA
    • ,
  • Sandra E. Ward, PhD, RN, FAAN

      Affiliations

    • University of Wisconsin-Madison School of Nursing, Madison, WI 53792, USA
    • Senior author: Tel.: +1 608 263 5277; e-mail address: sward@wisc.edu (S.E. Ward).

Received 11 June 2007 ,Revised 2 May 2008 ,Accepted 9 May 2008.

References 

  1. Atkinson MJ, Wishart PM, Wasil BI, Robinson JW. The Self-Perception and Relationships Tool (S-PRT): A novel approach to the measurement of subjective health-related quality of life. Health & Quality of Life Outcomes. 2004;2(1):36–50
  2. Briggs L. Shifting the focus of advance care planning: Using an in-depth interview to build and strengthen relationships. Innovations in End-of-Life Care. 2003;5(2):www.edc.org/lastacts
  3. Briggs L, Kirchhoff KT, Hammes BJ, Song M, Colvin E. Patient-centered advance care planning in special patient populations: A pilot study. Journal of Professional Nursing. 2004;20(1):47–58
  4. Bullock K, McGraw SA, Blank K, Bradley EH. What matters to older African Americans facing end-of-life decisions? A focus group study. Journal of Social Work in End-of-Life & Palliative Care. 2005;1(3):3–19
  5. Calvin AO. Haemodialysis patients and end-of-life decisions: A theory of personal preservation. Journal of Advanced Nursing. 2004;46(5):558–566
  6. Chambers E, Germain MJ, Brown E. Supportive and palliative care for renal patients. London: Oxford University Press; 2004;
  7. Charlson ME, Pompei P, Ales KL, MacKenzie CR. A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation. Journal of Chronic Diseases. 1987;40(5):373–383
  8. Cohen LM, Germain MJ, Poppel DM. Practical considerations in dialysis withdrawal: “To have that option is a blessing”. JAMA. 2003;289(16):2113–2119
  9. Cohen LM, Moss AH, Weisbord SD, Germain MJ. Renal palliative care. Journal of Palliative Medicine. 2006;9(4):977–992
  10. Curtis JR, Patrick DL, Caldwell E, Greenlee H, Collier AC. The quality of patient–doctor communication about end-of-life care: A study of patients with advanced AIDS and their primary care clinicians. AIDS. 1999;13(9):1123–1131
  11. Dilworth-Anderson P, Williams SW. Recruitment and retention strategies for longitudinal African American caregiving research: The Family Caregiving Project. Journal of Aging and Health. 2004;16(5 Suppl):137S–156S
  12. Donovan HS, Ward SE. A representational approach to patient education. Journal of Nursing Scholarship. 2001;33(3):211–216
  13. Donovan HS, Ward SE, Song M, Heidrich SM, Gunnarsdottir S, Phillips CM. An update on the representational approach to patient education. Journal of Nursing Scholarship. 2007;39(3):259–265
  14. Emanuel LL. Advance directives and advancing age. Journal of the American Geriatrics Society. 2004;52(4):641–642
  15. Hammes BJ, Briggs L. Respecting choices: Advance care planning facilitator manual. La Crosse: Gundersen Lutheran Medical Foundation; 2000;
  16. Heeren O, Menon AS, Raskin A, Ruskin P. Religion and end of life treatment preferences among geriatric patients. International Journal of Geriatric Psychiatry. 2001;16(2):203–208
  17. Hewson M. Patient education through teaching for conceptual change. Journal of General Internal Medicine. 1993;8(7):393–398
  18. Holley JL, Hines SC, Glover JJ, Babrow AS, Badzek LA, Moss AH. Failure of advance care planning to elicit patients' preferences for withdrawal from dialysis. American Journal of Kidney Diseases. 1999;33(4):688–693
  19. Kagawa-Singer M, Blackhall LJ. Negotiating cross-cultural issues at the end of life: “You got to go where he lives”. JAMA. 2001;286(23):2993–3001
  20. Kwak J, Haley WE. Current research findings on end-of-life decision making among racially or ethnically diverse groups. Gerontologist. 2005;45(5):634–641
  21. Leventhal H, Diefenback M. The active side of illness cognition. In:  Skelton JA,  Croyle RT editor. Mental representation in health and illness. New York: Spinger-Verlag; 1991;p. 247–272
  22. Leventhal H, Nerenz D, Steele DS. Illness representations and coping with health threats. In:  Baum A,  Singer JE editor. Handbook of psychology and health. Vol. IV:New York: Erlbaum; 1984;p. 221–252
  23. Mendelssohn DC, Singer PA. Advance directives in dialysis. Advances in Renal Replacement Therapy. 1994;1(3):240–250
  24. Perry E, Swartz J, Brown S, Smith D, Kelly G, Swartz R. Peer mentoring: A culturally sensitive approach to end-of-life planning for long-term dialysis patients. American Journal of Kidney Diseases. 2005;46(1):111–119
  25. Phipps E, True G, Harris D, Chong U, Tester W, Chavin SI, et al. Approaching the end of life: Attitudes, preferences, and behaviors of African-American and White patients and their family caregivers. Journal of Clinical Oncology. 2003;21(3):549–554
  26. Posner G, Strike K, Hewson P, Gertzog W. Accommodation of a scientific conception: Toward a theory of conceptual change. Science Education. 1982;66:211–227
  27. Saha S, Arbelaez JJ, Cooper LA. Patient–Physician relationships and racial disparities in the quality of health care. American Journal of Public Health. 2003;93(10):1713–1719
  28. Schwarz N. When thinking feels difficult: Meta-cognitive experiences in judgment and decision making. Medical Decision Making. 2005;25(1):105–112
  29. Song M, Kirchhoff KT, Douglas J, Ward SE, Hammes BJ. A randomized, controlled trial to improve advance care planning among patients undergoing cardiac surgery. Medical Care. 2005;43(10):1049–1053
  30. Song M, Sereika SM. An evaluation of the decisional conflict scale for measuring the quality of end-of-life decision making. Patient Education and Counseling. 2006;61(3):397–404
  31. Tanyi RA, Werner JS. Spirituality in African American and Caucasian women with end-stage renal disease on hemodialysis treatment. Health Care for Women International. 2007;28(2):141–154
  32. U.S. Renal Data System (2007). USRDS 2007 annual data report: Atlas of end-stage renal disease in the United States (Vol. 2007). Bethesda, MD: National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases.
  33. Waters CM. Understanding and supporting African Americans' perspectives of end-of-life care planning and decision making. Qualitative Health Research. 2001;11(3):385–398
  34. Weisbord SD, Fried LF, Arnold RM, Rotondi AJ, Fine MJ, Levenson DJ, et al. Development of a symptom assessment instrument for chronic hemodialysis patients: The dialysis symptom index. Journal of Pain and Symptom Management. 2004;27(3):226–240
  35. Welch LC, Teno JM, Mor V. End-of-life care in black and white: Race matters for medical care of dying patients and their families. Journal of the American Geriatrics Society. 2005;53(7):1145–1153

PII: S0897-1897(08)00047-5

doi: 10.1016/j.apnr.2008.05.002

Applied Nursing Research
Volume 23, Issue 2 , Pages 65-72 , May 2010

Article Tools

* Image Usage & Resolution